An update... still waiting. Prayers needed.

 Rylie in the hospital, waiting and praying for good news.

So the lead cardio doctor came to consult with me today and they are ordering an MRI of Rylie' heart to take a good look at veins supplying oxygen to her lungs. After the MRI the cardio team will meet and decide if Rylie will be able to have the 2nd bypass (Glenn) surgery. Pretty much, if Rylie is to have any quality of life that's the route we need to take. If for some reason she's not able to have the Glenn, it will just be a matter of keeping her comfortable with meds. Her ability to function with meds is short term. Please pray that we are able to have the Glenn.

Update 04.05.10

Rylie spent her first Easter in the hospital. Isn't she adorable?

The transplant doctor came by this afternoon with discouraging news. The antibodies are indeed coming from Rylie which means she is not a candidate for transplant at this time. The doctor said he's not ever seen antibodies this high in a baby as small as her. With that said, we are going to meet with the cardio team tomorrow to find out where we go from here. The transplant doc seemed to think we'd just go forward with the original plan, including 3 heart bypasses (she has already had the first). The second was to originally to be done between 3-6 months. The third sometime after age 2. Even though the news was grim we are keeping up our prayers and our faith in God.

Rylie and family were able to spend some time together on Easter. There are several fundraisers in the works for the Crenshaw family. Details to follow later tonight. Hope you can help!